Regarding global improvement in functioning, data indicate that SLR programming far exceeded recommended benchmarks for successful mental health programs for adults with severe mental illness.
Regarding the profile of improvement across specific domains of functioning, the domains with the greatest magnitude of improvement (self-management of health conditions, communication skills, time management, productivity, money management, problem solving, and leisure skills) are domains of functioning that are directly targeted by the therapeutic programming at SLR, suggesting that improvement is likely due to participation in the SLR program, rather than passage of time. In particular, the structure of the work program and scheduled leisure and recreational activities help residents regulate their social rhythms, provides opportunities for behavioral activation, and allows for productive engagement in a community that becomes routine. Examination of potential psychological mechanisms that account for improvement could be useful in future program evaluations to rule out alternative explanations for improvement.
These data also suggest several future directions for continued program evaluation. First, the safety domain of this instrument may be challenging, but essential, to administer in the context of SLR for which residents are working on a farm and using potentially dangerous tools. This item assesses the frequency with which residents are able to safely use tools, small appliances, sharps, ovens/stoves, and other potential safety hazards, as well as their judgment in making safe decisions. It would be useful to better understand how these ratings are made by staff and ensure that those making ratings are doing so consistently. Staff could be encouraged to provide brief notes regarding reasons for selecting ratings on this domain, as well as any difficulties in making ratings due to variability within this domain – for example, residents could demonstrate high functioning within the home, but demonstrate challenges during the work program and this variability might be masked by the overall rating. Changes in ratings in this domain in particular may be due to gathering additional information about residents as they engage in the work program; Given the importance of this domain for safe functioning outside the community, the fact that the average score for this domain remains in the mildly impaired range suggests that this domain should be studied further to determine whether enhanced programming might be needed to maximize recovery and optimal functioning for residents, or whether improvements in how this domain is assessed are needed (and lack of improvement could be accounted for by potential limitations with this assessment).
Given residents’ lack of access to substances at SLR, interpreting the substance use domain is also challenging and additional information on how raters selected scores for that domain could be useful. Of note is that in the validation study, this domain demonstrated the lowest level of inter-rater reliability; thus, the low degree of improvement in this domain could also be due to difficulties with reliably assessing this domain. It may be useful to supplement these ratings with validated, brief self-report measures of urges to use substances and actual usage, including re-administration of these measures once residents return to the community and have access to substances.
Behavior norms and social skills also appeared to be less responsive to SLR programming, which could be due to the challenge of behavioral interventions in modifying these functional domains in serious mental illness, but could also indicate an area for more precise assessment, as the DLA-20 may not provide the best assessment tool for this domain; alternatively, re-administration of this measure two-weeks after admission may be useful as a more accurate reflection of baseline functioning (once staff have more information to inform ratings). These data could also indicate that enhanced programming addressing these domains could be useful; for example, structured therapeutic groups in social skills training for psychotic disorders have shown benefit and could help residents optimize their engagement with the SLR community outside of groups.
While functional impairment is a key aspect of recovery and rehabilitation from SMI, it is not the only metric that could be associated with participation in the SLR community. Quality of life, which is best assessed via self-report is also a key dimension. Future program evaluation and quality improvement efforts could consider administering self-report scales that capture health-related quality of life (e.g., the World Health Organization Quality of Life Brief Scale) and/or life satisfaction could provide useful outcome measures to supplement the DLA-20. Norms and administration information for the WHOQOL in the U.S. are available through the University of Washington. Self-report of psychiatric symptoms could also be useful. A self-report scale that assesses several domains of functioning (physical and social function, pain interference) as well as psychiatric symptoms (depression, anxiety) and physical health symptoms (fatigue, pain, sleep) is the PROMIS 29-item Profile Self-report version. PROMIS (Patient Reported Outcomes Measurement System) are a set of brief self-report scales developed by the National Institutes of Health with strong validity data that are sensitive to change and associated with population norms that allow for ease of interpretation.
Continued collection of DLA-20 scores will be useful; re-analysis of these data once additional ratings are available (i.e., at least 50 residents) would be useful. At this point, it could be useful to consider publishing results in a peer-reviewed journal if program development grants (e.g., SAMHSA grants) were of interest to obtain funding for additional program evaluation or supplemental clinical programming (e.g., social skills training groups) for which funding would be needed to train staff, obtain program materials, and collect outcomes data.